Short Lives Analytics™
Demonstration data only — anonymisedBack to site

Total Patients

2,509

matching current filters

Advance Care Plan

9%

have ACP in place

Known to Specialist

2%

specialist palliative care

High Polypharmacy

14%

on 10 or more medicines

Most Deprived Quintile

34%

in deciles 1-2 (NIMDM 2017)

Unplanned Admissions

2,929

cohort total, last 12 months

Antenatal Cohort

12

life-limiting fetal diagnoses

NI Health Trust Distribution

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Belfastn=452Northernn=577Westernn=484Southernn=524South Easternn=472
Fewer — More patients

Patients by Diagnostic Category

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TfSL Category of Care by Age Band

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ALife-threatening  BLife-shortening  C Severe medical complexity

Population figures modelled on Make Every Child Count (Fraser et al., 2020). Age-specific prevalence rates applied to NI population structure; NI totals from the study's projections (n=2,497, Model 3, 2018). The antenatal cohort (pregnancies with a life-limiting fetal diagnosis) is a clinical estimate additional to the study. Patient-level data is simulated for demonstration.

Stage of Illness

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2,509

children

Complexity of Need Distribution

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Key Quality Indicators

Advance Care Plan in place222 / 2509
Known to specialist palliative care team55 / 2509

Polypharmacy bands

1-4 medicines (low)1185
5-9 medicines (medium)983
10+ medicines (high)341

Advance Care Planning by Stage

ACP coverage where it matters most — by current stage of illness

Stable192 of 2437 have an ACP8%
Unstable14 of 48 have an ACP29%
Deteriorating15 of 22 have an ACP68%
Dying1 of 2 have an ACP50%

8 children in the deteriorating or dying phase have no Advance Care Plan in place — the unmet need this platform is designed to surface.

Unplanned Hospital Admissions (last 12 months)

Unplanned (emergency) admissions per child. Admission frequency tracks complexity and stage of illness — a key marker of unmet community support. Demonstration data.

Patients by Deprivation Decile (NIMDM 2017)

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Decile 1 = most deprived  |  Decile 10 = least deprived  | Red— deprived  Blue — affluent

Based on NIMDM 2017 (NISRA). Deprivation is an area-level measure assigned via patient postcode to Super Output Area. Demonstration data only.

Patient RegistryClick a column heading to sort

2,509 patients · Page 1 of 126
Patient IDTrustSOAAgeDiagnostic CategoryTfSLStageComplexityACPSpecialistMedsAdm.Depr.
PT-0001SouthernEnniskillen 0011-5Oncology/HaematologyBStableLow111
PT-0002South EasternHolywood 001Under 1CardiovascularCStableModerate707
PT-0003SouthernLurgan 00216-19Congenital/GeneticAStableModerate1001
PT-0004South EasternKillinchy 00111-15Congenital/GeneticAStableLow121
PT-0005WesternClaudy 00211-15Neurological/NeuromuscularBStableLow205
PT-0006South EasternCrossgar 0011-5OtherBStableModerate301
PT-0007NorthernNewtownabbey 0011-5Congenital/GeneticAStableLow105
PT-0008BelfastMalone 001Under 1Congenital/GeneticCStableHigh717
PT-0009WesternDungiven 00111-15OtherBStableLow314
PT-0010South EasternHillsborough 00116-19CardiovascularBStableSevere783
PT-0011NorthernGlengormley 0011-5Congenital/GeneticCStableModerate621
PT-0012BelfastLisburn Road 00116-19Congenital/GeneticAStableModerate245
PT-0013BelfastStranmillis 001Under 1Congenital/GeneticAStableLow222
PT-0014NorthernPortrush 001Under 1Neurological/NeuromuscularAStableModerate806
PT-0015WesternDerry City 00216-19CardiovascularBStableLow312
PT-0016NorthernBallymoney 00111-15Oncology/HaematologyBStableSevere935
PT-0017NorthernRandalstown 0011-5OtherAStableLow206
PT-0018South EasternHolywood 0016-10Congenital/GeneticCStableModerate314
PT-0019NorthernMossley 00116-19CardiovascularCStableSevere702
PT-0020NorthernBallymoney 001Under 1Neurological/NeuromuscularAStableSevere1224