Transforming Paediatric Palliative Care through Data Analytics
The first dedicated platform for capturing and analysing population level data and improving care for children and young people with life-limiting conditions — built to integrate with Epic EHR.
Aims of Project
Platform Capabilities
Everything your team needs
EHR Integration Epic
Seamlessly pulls structured palliative care data directly from Epic — linking clinical records to population-level analytics without disrupting existing workflows.
Real-time Analytics
Live dashboards showing patient diagnostic groups, breakdowns by trust area and deprivation scale, level of complexity, stage of illness, and hospital admission rates — giving your team an instant population-level picture.
Built-in Tracking for Service Development
Identify unmet areas of need, monitor quality of life measures over time, and build the evidence base your team needs to develop, justify and improve palliative care services across your trust.
See your data come to life
The Short Lives Analytics™ dashboard brings together every dimension of your paediatric palliative care cohort — filterable by trust, age, diagnosis, complexity, and more — all in one secure clinical interface.
Patient Distribution — NI
300 patients across 5 health trusts
By Diagnostic Category
Key Indicators
Patient Registry (Sample)
Demonstration data only — no real patient data is displayed
Built to NHS Standards
Data Safety & Security
Patient data demands the highest standards of clinical safety, security and governance. Short Lives Analytics™ is being architected from the ground up to meet NHS compliance requirements — not as a late-stage addition, but as a core design principle.
Clinical Safety — DCB0129 & DCB0160
Adherence to NHS clinical risk management standards, ensuring hazards introduced by health IT systems are systematically identified, assessed and controlled throughout development.
NHS Data Security & Protection Toolkit
Designed to meet DSPT requirements — the annual operating standard for organisations handling NHS patient data, covering technical, governance and organisational controls.
Digital Technology Assessment Criteria (DTAC)
Aligned to DTAC — the NHS and social care gateway for digital health tools — covering clinical safety, data protection, technical security, interoperability, and accessibility.
HL7 FHIR Integration
Built on HL7 FHIR — the NHS-mandated healthcare data exchange standard — using correct clinical profiles, terminology bindings, and NHS-approved coding systems including SNOMED CT and ICD-10.
ISO 27001 — Information Security
Targeting ISO 27001 certification — the internationally recognised standard for information security management — to provide assurance over how patient data is stored, accessed and protected.
UK GDPR & Data Minimisation
Patient data is processed only for defined clinical and analytical purposes under UK GDPR. Data minimisation, pseudonymisation, and appropriate retention policies are built into the platform architecture.
Safety and compliance designed in — not bolted on
Clinical safety, data governance and interoperability are core architectural requirements from day one — not afterthoughts. Every integration with Epic EHR and NHS infrastructure is designed to meet the standards expected of clinical systems operating within the NHS.
Platform Preview
See it in action
A live interactive dashboard is currently in development. Check back soon for a full preview of the analytics platform.
Interactive Dashboard — Coming Soon
The full analytics dashboard — including population-level prevalence maps, cohort breakdowns, complexity of needs scoring, and care pathway compliance tracking — is currently being designed and will be showcased here.
About
The person behind the project
Dr David Graham
Founder & Consultant Paediatrician with an interest in Paediatric Palliative Care
I am a Consultant Paediatrician with a specialist interest in Paediatric Palliative Care and have a deep commitment to improving the lives of children and young people with life-limiting conditions and their families. Throughout my clinical career I have seen first-hand how fragmented and incomplete data makes it incredibly difficult to understand the true scale and complexity of need — both within individual trusts and across populations.
Short Lives Analytics™ was born from that frustration. My goal is to build a platform that gives clinicians, teams and commissioners the population-level insight they need to plan services, demonstrate impact, and ultimately deliver better, more equitable care for some of our most vulnerable patients.
I am proud to be developing this project with the support of the NHS Clinician Entrepreneur Programme — an initiative that empowers NHS clinicians to turn ideas into real-world solutions that benefit patients and the wider health system.
Interested in Short Lives Analytics™? Let's make a connection.
We want to hear from across the system — whether you are an NHS trust interested in piloting the platform, a university exploring research collaboration, an integrated care board or the Department of Health considering commissioning opportunities, or a clinician or family wanting to share what matters most.
No commitment required. GDPR compliant. NHS data security standards.
Prefer to connect directly? Find Dr David Graham on LinkedIn →